Family network of children with special health needs: implications for nursing.

نویسندگان

  • Eliane Tatsch Neves
  • Ivone Evangelista Cabral
  • Andressa da Silveira
چکیده

OBJECTIVE to describe appropriate sources and resources for caregivers of children with special health needs in the community. METHOD A qualitative study that used the creativity and sensitivity dynamics speaking map, part of the sensitive creative method, involving 11 caregivers of children with special health needs who are assisted in a university hospital located in the South of Brazil. RESULTS the maps graphically represented through the genogram and ecomap showed that the caregiving women consistently and regularly use the resources of the internal and external family network; they eventually and irregularly access the community social network for physical and psychological support. CONCLUSION the reclusive nature of care for these children inside the family circle contributes to their social invisibility. Based on this new information, it is recommended that Nursing participate in the care that is focused on these children's families, with particular attention to their socio-cultural conditions.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

Basic Needs of Mothers with Children Undergoing Hemodialysis: A Meta-synthesis of Qualitative Studies

Background: Mothers of children undergoing hemodialysis encounter severe changes in their daily lives. It is of utmost importance to raise the awareness of treatment teams about the needs of these specific groups of mothers and different problems they may experience. The reason is that it can help health care professionals to support the mothers to fulfill their roles as the primary caregivers ...

متن کامل

The social network of children with special healthcare needs in the (in)visibility of nursing care.

This study aimed to identify the (in)visibility of nursing care and discuss ways of (dis)articulating this care with family care in the social network of children with special healthcare needs. A qualitative research was performed with health professionals at a pediatric hospital, four units of the Family Medical Program (FMP), and children's relatives living in Niterói (RJ). The field work was...

متن کامل

Beyond the medical home: Special Care Family Academy for children and youth.

Children and youth with special health care needs require more health care and related services and consequently incur more costs than other individuals. Implementation of the "medical home" concept has benefitted children with special needs, resulting in fewer unmet medical needs and more consistent health care delivery. As advances in health care have enabled an increasingly higher percentage...

متن کامل

[Vulnerability of children with special health care needs: implications for nursing].

This qualitative-based descriptive, exploratory research aimed to provide an account of the vulnerability of children with special health needs in terms of required care and everyday life support. The subjects were ten family members/caregivers of children who were approached in a pediatric admission unit of a teaching hospital. Data were produced by means of the creative and sensitive method m...

متن کامل

Assessment and Intervention in the Adaption Process of Families of Children with Special Needs: Introducing the Double ABCX Model

Research findings indicate that parents of children with special needs may experience more stress in different contexts, which can affect family performance and lead to incompatibility and vulnerability. The present study aims to introduce a multifaceted and widely used model for assessing and explaining compatibility of families of children with special needs. This study employs a review desig...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:
  • Revista latino-americana de enfermagem

دوره 21 2  شماره 

صفحات  -

تاریخ انتشار 2013